Cystic fibrosis pen-pal club and support group

04/09/2026

great work we are now at 8 names keep those names coming

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04/08/2026

Good morning everyone I would just like to let you all know that we are still very much working on getting the cystic fibrosis Benbo club and support group T-shirts completed so we still need your names folks. We are at name number six right now so we have out of the 250 names available we have already used six names meaning six spots are already gone. I hope that you all come and enjoy the opportunity to spread awareness for cystic fibrosis. It is the leading number one killer in children and young adults around the world, and the awareness for cystic fibrosis is very low. If we bring more awareness cystic fibrosis there will be more opportunities for us as patient, including, but not limited to help when we need to get to the hospital help when we need extra food help when we need other emergency items or nonemergency items for that reason I believe that if we keep on working together, we can even get a program like other foundations have like a food bank where they give you a food card to help you out make sure that you have food because it's one of the most important things for cystic fibrosis pat we also know that patients get to die diagnosed and told I'm sorry you can't have Social Security because of just your cystic fibrosis we wanna make that change as well. We wanna work with everyone so again folks help us make cystic fibrosis unknown medical condition not one that's placed on the back burner and let's get these T-shirts out by July 25 of my birthday this year 51 years and fighting cystic fibrosis. I can do it. We can all do it so let's keep up the good work folks for those that have been working with David law I appreciate it and you have done it so gratefully we also wanna make sure that everyone knows that I do help out with IEP programs for schools and 5041C as well if you need help with those programs and no one is there to understand cystic fibrosis I am that person I have helped to write many of them in many of them have been approved through the public school system in the United States so I ask you if you need someone I am here. The cystic fibrosis club and support group hotline is open 24 hours a day seven days a week. My number is 651-206-5226. take care to each of you ... Please everyone take a moment and enter your name down on the bottom area and I will also do my best to keep count right away your brother always cfkid wagner

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04/06/2026

Good morning everyone ! I hope that you all will have a wonderful day .. As I talked about in my live video on easter we are working on a cystic fibrosis support group new name t shirts and we would like to have them in everyones hands by just 25 th of this year.... We need 250 names if possible this is open to cystic fibrosis patients living or whom have gone to heaven please if you are interested in having your name on the t shirt please let me know as soon as possible... All I need you to do is write your name below and I then will get the name on the t shirts as soon as we reach the number I will close the name list and get the t shirts to print .. I will get us started below. thanks everyone for your help to may cystic fibrosis not a invisible medical condition take care brothers and sisters I am here always David cfkid wagner

01/30/2025

Good afternoon everyone ... I hope that everyone is staying as healthy as possible and if your in club med I hope that you are going home very soon... I have been sick for the month of January and I am hoping to return to work on the 9th of feb as long as the x ray comes back ok ... I would like to try a food shelf program for us . I get calls all the time from families asking if we know were we can go to get help with food due to the food costs increasing we need to come up with away to help these families ... I have to tell you that I have been in this way as well and its very hard to know what to do when you have no money until the following week .. When I was young are state use to give a increase of food. stamps for cystic fibrosis patients and they do not do that anymore so upsetting we need to work on getting this back and the only way that will happen is to contact every law maker on both sides CF needs some help I know many families will agree.. I remember when cf clinic s use to give a gift card s but I have not seen that as well for some time .. Lets get this going your brother always David cfkid wagner

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08/28/2024

Have you ever been to the ssi office in Minneapolis mn the one on Chicago ave south .. I would like to take a survey on how people think they get treated there by the security team that is watching the front door Yesterday I went there and it was the worst they need to learn there Job and show respect to people I saw them make a lady whom just moved to MN cry because how they treated her and her young son she told me what happen and I thought that was the most saddest thing ever they do not know any matters they act like they are ssi staff and they are not they yell at people whn they do not understand what is going on and now your forced to go down there if you need a new ssi card I found away to get a card but it was online but a online fee of $40 but I got mine for free the lines are very long please I want to hear your thoughts on how you have been treated at these ssi offices in MN and other states throughout America thanks for your time David cfkid wagner

04/09/2024

Att everyone please note that my address is now the following
[email protected]

02/16/2024

Dear law makers of mn,

Today I would like to take a moment and speak with you about some very urgent issues that are happening ... The state of mn medical program offerers a ride to the medical meeting s with Drs and that is wonderful however here is were the problem comes in... Currently all people that use the ride program must know 2 to 3 days ahead in order to get to the Dr meetings now we all know as humans we sometimes get sick and we do not know that far in advance . We also have at times have Dr s or nurses that will call these same patients and ask them to come in that same day or the next day and when you call the ride program they will tell you no well in my eyes and many other s that I have spoken with agree if a Dr is asking for you to come to see them for testing or what ever there is a good reason why they want to see you right away and calling 911 for this is not a good option because these are not emergency rides they are urgent rides instead the other sad deal is that metro mobility also does this same thing and so are people using these services can not go anywhere unless they have 2 days planned ahead of time in order to get care now before covid 19 the metro mobility did have same day rides and they also had next day rides now those are gone we need to correct this issue right away like I have stated above that everyone needs medical meetings with Drs and nurses and sometimes even a ride to the pharmacy if we need to get a law that say s that all those on these programs must be able to get a ride during the same day or at least the next day but waiting two days makes it very hard on everyone ... Metro mobility is also used to take people other places then just Dr meetings and no one wants to be stuck in the home because they can not find a ride I know that mn can do better then what they are doing now maybe we need to get another vendor to help but leaving a person behind makes things very hard for everyone. I know that people have been left behind from both of these programs now let me explain if you take a ride to the store and you do your shopping you get 3 hrs and then they come back and get you however there has been times when they never show up now if we do that we get counted as a no call no show and if you get too many of them they will kick you off the programs I say that it needs to be a rule that say s if they don't show up then they get in trouble just like we do instead of them doing nothing my one client got stuck for hrs at a place many miles away from his home and so he had to call someone from another city and tell them to come and get them that time the provider did not pick the client up or get in trouble for this issue .. There is also not many cabs in the state of mn that are for people in wheelchairs and other devices they used to have many more but now they have went away even if a company of a taxi service had them on a on call so that if a person needed them they would have at least a chance to get home all I am saying is not everyone has someone that they can call to get that help and if they do it could be a very long wait for them changes in the ride programs need to change insurance pays for the medical rides but why does it have to be this bad can some law maker please come out with some new laws that will fix these issues and if any of them would like to speak with me about this I would speak out with many other s you can reach me anytime 763 280 2137 thanks so much for your understanding and support. your mn resident David cfkid Wagner

07/27/2022

*BREAKING NEWS *
*PLEASE READ*

Good morning
everybody this is David Wagner calling everybody today I hope you all are having a great summer I have some wonderful breaking news today we just found out that we are going to have virtual Court on August 22nd on a Monday to finish up my name change to David CF kid Wagner this is am so very important and very excited and I hope that you all will join me on this historic day August 22nd this day will mean so much to many cystic fibrosis patients around the world it is time for us to shine it is time for us to be acknowledged and not be placed off the back burner please remember that this is not a done deal yet but is very very close of completion and I think each of you for your blessings your thoughts and your prayers as we go through this great big name change thank you very much for your time remember please leave nice comments below other comments will be deleted thank you so much may God be with each of us and let's have a great summer be safe out there thank you your brother always David Wagner

08/26/2021

If y are having a hard time deciding on to send your cf students to school please reach out to me on the hot line 763 280 2137

08/15/2021

Look everyone are group was on the score board at the mn twins game