T1D Advocate for change

T1D Advocate for change Advocacy to change "what is" Into "what should be". A helping hand from someone who understands life with Type 1 diabetes..

17/06/2026

T1Ds on insulin pumps — I want to hear from you!

If you use an insulin pump, what are three words that capture what it often feels like to use one?

Drop your 3 words below — honest, funny, emotional, real — all responses welcome. 👇
Let’s show the full range of experiences that come with insulin pump therapy. 💙

16/06/2026

Type 1 Diabetes (18+) in Australia — let’s talk about adult clinic care 🇦🇺

I want honest, real-world experiences from people living with T1D who are now in adult care.

Across Australia, adult diabetes services are often described as “fine on paper” — but many patients report very different experiences in practice.

So I’m asking openly:

• Is adult diabetes care actually meeting your needs?

• Have you felt a drop in support after leaving paediatric care?

• How hard is it to access endocrinologists, diabetes educators, and dietitians when you need them?

• Are technology supports (CGM, pumps, closed loop systems) well understood and supported — or is it a struggle?

• Do you feel heard in appointments, or rushed through?

• What are wait times like in your clinic or hospital service?

• Was parking a nightmare and costly?

• Have you ever felt like you’re “on your own” managing T1D as an adult?

For those who transitioned from paediatric to adult services — was it a smooth handover, or a shock?

This isn’t about blaming individual clinicians. It’s about understanding whether the system itself is actually working for adults living with a complex lifelong condition.

Good, bad, or frustrating experiences — all perspectives are welcome. Patterns matter more than one-off stories.

Share your experience below 👇

What is a Health Care Card for?A Health Care Card is for healthcare.It is NOT something people should lose because they ...
14/06/2026

What is a Health Care Card for?

A Health Care Card is for healthcare.

It is NOT something people should lose because they work.

It is NOT something people should lose because they turn a certain age.

People with lifelong conditions such as Type 1 Diabetes (T1D) have lifelong costs.

Insulin does NOT become cheaper because someone gets a job.

Diabetes does NOT disappear because someone turns 18, 21, 25, or 65.

The cost of staying alive does NOT change because of a government policy.

Medical support should be based on medical need.

Ministers, please remember this:

Healthcare is a need, NOT a reward.

People do not stop needing healthcare because they are working, ageing, or doing their best to live independently.

If you agree, tag your local MP, Senator, Minister, or shadow Minister.

Help us make sure decision-makers hear directly from the people affected.

13/06/2026

Question for the Type 1 Diabetes community in Victoria 👇🇦🇺

Have you ever needed a workplace T1D management plan for your employer, manager, or HR team?

I've been looking into what's available and found some workplace guides, checklists, and information sheets, but very few ready-to-use workplace management plan PDFs specifically for adults with Type 1 Diabetes.

Was it easy for you to find a suitable workplace plan?

Did you use a template, create your own, or not have one at all?

I'd love to hear about your experiences and whether you think there's a need for a simple, practical Workplace T1D Management Plan for Victorian workplaces.

Thanks in advance for your feedback! Deb

12/06/2026

Great initiative! NSW Health
I’d love to see information on the signs and symptoms of Type 1 Diabetes included in these packs.

Raising awareness among new parents could help lead to earlier diagnosis and prevent diabetic ketoacidosis (DKA), a serious and potentially life-threatening complication that can occur before Type 1 Diabetes is recognised.

What do my followers think of this suggestion? Would information about Type 1 Diabetes be a valuable addition to the Baby Bundle for new parents? 💙🩷

Dexcom G7 - alternative screening ✈️🧳We've had this discussion before and I'm grateful for your previous replies. As you...
11/06/2026

Dexcom G7 - alternative screening ✈️🧳

We've had this discussion before and I'm grateful for your previous replies.

As you know I'm passionate about making sure people with diabetes receive clear information about travelling with medical devices.

Ive previously shared your feedback and advice and advised your consumers to contact your department if a devices have been compromised.

I understand travellers are stressed when they see security open Dexcom boxes and worry about the device being compromised. I'm constantly trying to explain the outer box of the Dexcom sensor is a non sterile cardboard box.

Its the individual Dexcom sensors with sterile twist tabs we don't want security to open. Correct. Hope that makes sense.

Good morning Deb



Thank you for raising this again and for the continued advocacy you provide to travellers managing diabetes.



What you explained is accurate and makes complete sense. The outer Dexcom box being non-sterile can be opened by security if required for inspection purposes. The individual applicator/sensor (with twist tabs) are the critical components that should not be opened or tampered with, as this would compromise sterility and usability. This distinction is important, and we strongly encourage travellers to clearly communicate this to screening officers when requesting alternative screening.



That said, I’d like to clarify the position regarding airport screening in Australia from a technical support and advisory perspective.



From a professional standpoint, it is not accurate to state that airport security officers are “not permitted under the law” to open any medical devices. Under Australian aviation security requirements, screening officers are authorised to inspect items, including medical-related items, where necessary to resolve a security concern. This may involve visual inspection, physical examination, or trace detection methods.



From a technical support perspective, we recognise that this process can be concerning for travellers. Where screening results in uncertainty about device integrity, AMSL/Dexcom will continue to support customers and address any issues or concerns that may arise as a result of screening.



We strongly recommend that travellers:

Proactively advise screening officers about their medical devices
Request alternative screening if required (e.g. visual inspection or swabbing)
Clearly indicate that while the outer box may be opened, the sealed sterile components should remain unopened


Thank you again for your ongoing efforts to ensure travellers are well-informed and supported.



Kind regards,



Technical Support Supervisor – ANZ | Dexcom Australia

HEALTH CARE CARD FOR MEDICAL NEEDSSupport extending Health Care Card eligibility for lifelong conditions, such as Type 1...
09/06/2026

HEALTH CARE CARD FOR MEDICAL NEEDS

Support extending Health Care Card eligibility for lifelong conditions, such as Type 1 Diabetes. Below is a copy of a response to my correspondence to the Minister for Health and Ageing and the Minister for Disability and the National Disability Insurance Scheme, the Hon Mark Butler MP. Yesterday I was advised to contact Senator Katy Gallagher for support.
[email protected]

Services Australia
Mark Butler MP

Advocating for all Australians living with a lifelong autoimmune disease T1D.

Thank you Abbott Diabetes Care Australia 🇦🇺 Hi Deb Screening Diabetes Teach: Travel & Airport Security with Libre Sensor...
08/06/2026

Thank you Abbott Diabetes Care Australia 🇦🇺

Hi Deb

Screening Diabetes Teach: Travel & Airport Security with Libre Sensors

A reminder for anyone using FreeStyle Libre sensors:

Medical sensors, including FreeStyle Libre, Libre 2, Libre 2 Plus, and Libre 3 Plus, cannot safely go through all airport screening systems.

✅ Safe: Walk-through metal detectors

⚠️🚫 Not recommended: Full-body scanners (millimeter wave scanners) and baggage X-ray machines. These screening devices may damage the sensor or lead to inaccurate glucose readings.

If you're travelling, inform security staff that you're wearing a medical sensor and request an alternative screening method if needed.

Should you have any questions or require further assistance, please don't hesitate to contact us.

Kind regards,

FREESTYLE CUSTOMER CARE
1800 801 478
FreeStyle Libre 🦋

NATIONAL DONUT DAY! For those of us celebrating in the Type 1 Diabetes world, it comes with a bit of extra planning — en...
05/06/2026

NATIONAL DONUT DAY!

For those of us celebrating in the Type 1 Diabetes world, it comes with a bit of extra planning — enjoy the donut, just with a bit of maths on the side. 🍩

What's your favourite donut?

Yes, we can eat donuts.
And No, your turmeric and cinnamon won't cure us..

Happy National donut day! 😉

The FreeStyle Libre 2 sensor (NDSS Code 970) is being discontinued by Abbott Diabetes Care and will no longer be availab...
02/06/2026

The FreeStyle Libre 2 sensor
(NDSS Code 970) is being discontinued by Abbott Diabetes Care and will no longer be available through the NDSS from 1 July 2026

FreeStyle Libre | Flash Glucose Monitoring System | Abbott Diabetes Care Australia

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Melbourne, VIC

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