The Jenny Hatch Justice Project

The Jenny Hatch Justice Project Inspiration. Strength. Justice. The Jenny Hatch Justice Project is an initiative of Quality Trust to inspire and support strength and justice through advocacy, information, research and education, by giving people with disabilities, families, advocates, attorneys, professionals the tools they need to protect and promote the rights of people with disabilities to make their own choices and determine their paths and directions in life.”
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Come join us tomorrow at 2:00 PM EDT for a webinar on Supported Decision-Making, hosted by the National Down Syndrome Co...
12/09/2019
Parent Webinars | National Down Syndrome Congress

Come join us tomorrow at 2:00 PM EDT for a webinar on Supported Decision-Making, hosted by the National Down Syndrome Congress.

https://www.ndsccenter.org/outreach-education/parent-webinars/

The purpose of the NDSC is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information. When we empower individuals and families from all demographic backgrounds, we reshape the way people understand and experience Down syndrome.

National Council on Disability
06/14/2019

National Council on Disability

Have you read NCD’s newest report on guardianship? It’s available at https://go.usa.gov/xmh34

Administration for Community Living
03/01/2019
Administration for Community Living

Administration for Community Living

DD Awareness Month is here! Join the #DDawareness19 social media campaign organized by the National Association of Councils on Developmental Disabilities, Association of University Centers on Disabilities, and National Disability Rights Network.

Quality Trust for Individuals with Disabilities, the Arc of the United States, and the Autistic Self Advocacy Network ar...
09/14/2018
Story Collection on Guardianship/Conservatorship

Quality Trust for Individuals with Disabilities, the Arc of the United States, and the Autistic Self Advocacy Network are working together to collect stories about how adult guardianship/conservatorship and alternatives impact people with intellectual and developmental disabilities (ID/DD). The stories are being gathered for a report that will be issued by the National Council on Disability.

We want to hear the perspectives of people with ID/DD, family members, lawyers, special education advocates, staff who provide transition services to youth with ID/DD, guardians, conservators, and other stakeholders. Here is a link to the story collection form and its instructions: https://fs16.formsite.com/u024508129ncearc/form304/index.html.

We hope that you will share your experiences and share this link with others who may be interested. We are trying to collect as many stories as we can by the end of September and beginning of October, so we would appreciate your help in spreading the word. Thank you!

Quality Trust for Individuals with Disabilities, the Arc of the United States, and the Autistic Self Advocacy Network are working together to gather stories for a report on adult guardianship and alternatives for people with intellectual and developmental disabilities. The report is being written fo...

Please read this Washington Post article to learn about the recent success of Quality Trust's Jenny Hatch Justice Projec...
07/03/2018
Quality Trust for Individuals with Disabilities

Please read this Washington Post article to learn about the recent success of Quality Trust's Jenny Hatch Justice Project in advancing Supported Decision-Making.

We are excited that the Washington Post has spotlighted Quality Trust’s recent court victory in fighting for a D.C. senior’s right to use Supported Decision-Making (link below). Thank you, Theresa Vargas, for recognizing the important work of Quality Trust and its Jenny Hatch Project!

Please help us spread the word about this success in advancing people’s “Right to Make Choices.”

04/14/2017
National Resource Center for Supported Decision-Making

New video series on Supported Decision-Making!

We're honored to share this video series on Supported Decision-Making produced by Minnesota Department of Human Services and Jonathan Martinis. Each video highlights a different aspect and application of SDM. Please feel free to link to or share this with anyone who may find it useful!

09/15/2016
ACL News: First-Ever National Resource Center for Self-Advocacy to Empower People with Intellectual and Developmental Disabilities

http://acl.gov/NewsRoom/NewsInfo/2016/2016_09_15.aspx

ACL is excited to announce the first-ever grant to establish a National Resource Center for Self-Advocacy (NRCSA) to empower people with intellectual and developmental disabilities (IDD) for enhancing their voice on issues important to their well-being and daily life. Self Advocates Becoming Empower...

04/21/2016

What's the opposite of inspiration porn? Kate Daly ACTUALLY INSPIRING a conference full of advocates, telling her story of how she reached her dreams and telling them how they can do it, too.

Thank you, Kate, for dreaming, achieving, and preaching. And for not settling for anything less than equal opportunity!

Thank you, Jessalyn Gustin for filming this and for working with Kate and so many others to create the Coordinated Culture of Support that is at the heart of Supported Decision-Making!

Can't wait to work with the two of you and Roy Gerstenberger to bring your vision to all of Vermont!

#AreYouNotInspired

Do you make decisions on whether to disclose your disability or medical condition when using social networking sites? no...
12/29/2015
Factors in Deciding to Disclose a Disability (or Medical Condition) Online

Do you make decisions on whether to disclose your disability or medical condition when using social networking sites?


notepad
WE NEED YOUR INPUT! We are conducting research about the decisions people make on whether to disclose their disabilities and medical conditions when on social networking sites. We want to learn about your opinions and experiences.

Please take this short, online survey if you are:
1. 18 years or older,
2. Use social networking sites such as Facebook, Twitter, Instagram, YouTube or other similar sites, and
3. Have a disability or a long-lasting medical condition.

The survey may take about 10 or 15 minutes.
Go to:
globe
https://goo.gl/6eGqr6

To find out more or ask for accommodations, contact William Myhill at Syracuse University: [email protected]

Factors in Deciding to Disclose a Disability (or Medical Condition) Online

Check out video highlights of Jonathan Martinis' presentation to the American Bar Association on Supported Decision-Maki...
12/10/2015
Legal director gives an overview on supported decision-making « ABA News Archives

Check out video highlights of Jonathan Martinis' presentation to the American Bar Association on Supported Decision-Making.
http://www.americanbar.org/news/abanews/aba-news-archives/2015/11/legal_director_gives.html

Jonathan Martinis, legal director of the Quality Trust for Individuals with Disabilities, gives an overview on supported decision-making, an alternative to guardianship. Martinis spoke at the National Aging and Law Conference on Oct. 30 in Arlington, Va.

A wonderful decision showing that basic civil rights are truly EQUAL rights!
11/04/2015
Guardianship Denied for Would-Be Groom Who Has Down Syndrome

A wonderful decision showing that basic civil rights are truly EQUAL rights!

'The right to have a family of one's own is not reserved only for persons with no disabilities,' Brooklyn Surrogate Margarita López Torres said, 'and th...

We're pleased to forward a link to the most recent publications of the Center for Parent Information and Resources – whi...
11/02/2015
Center for Parent Information and Resources

We're pleased to forward a link to the most recent publications of the Center for Parent Information and Resources – which is funded by the US Department of Education.

The publications give parents and professionals information and resources to help young adults “Get Ready” for Independent Living, directing their Health Care, and managing their Finances as they approach the Age of Majority. In particular, the Center cautions against the misuse of guardianship, calling it “one of the most legally restrictive forms of support” and stating that “many young people with disabilities can be adequately supported in adult life without a guardian.”

The National Resource Center for Supported Decision-Making is honored that the Center specifically identified us as a resource for parents and professionals.

We thank the Center for Parent Information and Resources and the Department of Education for this timely and badly needed effort. A recent study and journal article found that educational professionals are the number one source of referrals to guardianship. We hope these publications will be the first of many steps to close this “on ramp.”

Please visit www.SupportedDecisionMaking.Org for information, education, and resources on Supported Decision-Making and other alternatives to guardianship. Thank you all for your continuing support!

Featured Resource Community-Building Toolkits The Community Tool Box is a free, online resource for those working to build healthier communities and bring about social change. It offers thousands of pages of tips and tools for taking action in communities. Want to learn about community assessment, p…

If you weren’t one of the over 1,500 people who joined us for this week’s webinar “Winning the Case for Supported Decisi...
10/22/2015
Representing Clients in Guardianship Actions: Winning the Case for Supported Decision...

If you weren’t one of the over 1,500 people who joined us for this week’s webinar “Winning the Case for Supported Decision-Making,” please feel free to click on the link below.

http://www.nclc.org/national-elder-rights-training-project/guardianship-alternatives/representing-clients-in-guardianship-actions-winning-the-case-for-supported-decision-making.html

This webinar will help you learn how to "win the case" for Supported Decision-Making at three critical stages: (1) when helping the people you work with access supports and services to live independently; (2) when a petition for guardianship has been filed; (3) and when the person you're working with is under a guardianship.

The webinar - along with several other audio and video trainings, educational materials, and our research and resource libraries - can also be viewed at www.SupportedDecisionMaking.Org

The National Consumer Law Center is a nonprofit advocacy organization that seeks to build economic security and family wealth for low-income and other economically disadvantaged Americans.

FREE WEBINAR- Please join us on Tuesday October 20, 2015 at 2 pm EST. Jonathan Martinis and Dr. Rick Ellis will present ...
10/16/2015
Representing Clients in Guardianship Actions: Winning the Case for Supported Decision...

FREE WEBINAR- Please join us on Tuesday October 20, 2015 at 2 pm EST. Jonathan Martinis and Dr. Rick Ellis will present on "Winning the Case for Supported Decision-Making."

The National Consumer Law Center is a nonprofit advocacy organization that seeks to build economic security and family wealth for low-income and other economically disadvantaged Americans.

Friends,I’m pleased and proud to forward a link to the National Resource Center for Supported Decision-Making’s annual r...
10/05/2015
National Resource Center’s Annual Report 2015 | Supported Decision Making

Friends,

I’m pleased and proud to forward a link to the National Resource Center for Supported Decision-Making’s annual report.

http://www.supporteddecisionmaking.org/news/national-resource-center%E2%80%99s-annual-report-2015

As our report states:

In our first year of existence, the National Resource Center has touched the lives of thousands of people—across the United States and as far away as Ethiopia—including older adults, people with disabilities, families, attorneys, advocates, professionals, and providers. We have launched a website, had articles published and accepted for publication in national journals, spoken and been invited to speak at conferences around the country, presented a multi-part webinar series, created and implemented a state grant program, worked to develop and improve policy and practice, and collaborated with existing and new partners.

In the next year, we’ll conduct and sponsor ground-breaking research, speak and train across the country, and advocate for changes to policy and practice to increase access to and implementation of Supported Decision-Making. In other words: we’ll do everything we’ve been doing and more.

Please feel free to forward this email to anyone who may be interested and thank you so much for taking this journey with us!

Please take a look at this article from the Washington Post (tomorrow’s edition) about Ryan King  and his quest to be fr...
09/21/2015
Why a man with intellectual disabilities has fewer rights than a convicted felon

Please take a look at this article from the Washington Post (tomorrow’s edition) about Ryan King and his quest to be freed from guardianship.

Ryan, with the support of his parents, has worked at the same job for over a decade, volunteers in the community, manages his transportation and daily schedule, and cooks for himself and others. Yet, because he has disabilities, Ryan has been under guardianship since he turned 18.

In the article, award-winner journalist Petula Dvorak vividly captures the way Ryan works with his family to understand the situations and choices he faces, so he can make his own decisions. Still, because Ryan is under guardianship, he has lost his legal Right to Make Choices – as Ms. Dvorak points out, Ryan has less rights than the average convicted felon.

Ryan and his family are working together in the hope that he will be freed from guardianship and restored to his rights, so he can continue to use the Supported Decision-Making method that has served him so well. His story should give pause to those who are told that children with disabilities “must” have a guardian when they turn 18, and hope to those stuck in overbroad and undue guardianships.

Thank you, Petula Dvorak and the Washington Post! Please forward this article to anyone who may be interested.

https://www.washingtonpost.com/local/why-a-man-with-intellectual-disabilities-has-fewer-rights-than-a-convicted-felon/2015/09/21/2281f5c0-605e-11e5-b38e-06883aacba64_story.html?postshare=2831442855082381

Ryan King and his parents want him to be independent and make his own decisions. But a court has to agree.

Friends,I’m pleased to forward a copy of the Virginia Secretary of Health and Human Services’ Report and Recommendations...
09/16/2015
Supportive Decision-Making Study (HJR 190, 2014) | Supported Decision Making

Friends,

I’m pleased to forward a copy of the Virginia Secretary of Health and Human Services’ Report and Recommendations on Supported Decision-Making.
Supported Decision-Making is an alternative to guardianship that protects and promotes older adults and people with disabilities’ Right to Make Choices - to make their own decisions and direct their own lives while receiving the supports and services they need and want to do so. Supported Decision-Making can increase self-determination, which has been correlated with improved life outcomes like increased employment, independence, safety, and community integration.

The Secretary met with prominent Virginia and national disability rights advocates and organizations, including Quality Trust for Individuals with Disabilities, the Arc of Virginia, and Jenny Hatch to discuss ways the Commonwealth can increase access to and use of Supported Decision-Making.

The Secretary adopted the advocates’ recommendations, which include:
1. Adding Supported Decision-Making to the identified less-restrictive alternatives to guardianship in state law, regulation, and policy;

2. Requiring appointed guardians and authorized representatives to receive training in Supported Decision-Making and Person Centered Planning. Guardians and representatives must then commit to incorporating these practices into their work. Failure to do so will be grounds for removal from their decision-making roles;

3. Developing standardized procedures for conducting and reporting the results of capacity evaluations; and

4. Offering a general training on capacity and Supported Decision-Making.

Over the last year, the National Resource Center for Supported Decision-Making has spoken to, worked with, and trained thousands of people, families, advocates, attorneys, judges, health care providers, and professionals. If you’d like more information about Supported Decision-Making, you can access resources, education and training materials, videos, journal articles, and research on our website
Thank you and please remember: EVERYONE has the Right to Make Choices and EVERYONE needs a little help!

The attached report contains information about the background and context for the alternative to guardianship known as Supported Decision Making. Below is an executive summary that provides specific responses to the three elements of HJR 90 as written.

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